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Reception
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Full Schedule

Full Schedule

  • Saturday, November 5, 2022
  • 7:00 AM – 9:00 AM ET
    Continental Breakfast
  • 7:00 AM – 2:00 PM ET
    Poster Gallery Open
  • 7:10 AM – 7:25 AM ET
    15 Minute Guided Meditation
  • 7:30 AM – 9:30 AM ET
    CC01 - Challenging Cases for the CF PT & RT

    Chair: Dabney Eidson, RRT-NPS – Augusta University Children's Hospital of Georgia

    Chair: Melissa Richmond, MPT – BC Children's Hospital

    PT&RT

  • 7:30 AM – 9:30 AM ET
    CC02--Challenging Team Dynamics

    Chair: Kathryn Cooney, LICSW – Hasbro Children's Hospital/Rhode Island Hospital

    Chair: Rachel Grimes, LCSW – Cook Children's Medical Center

    SW/PSYCH

  • 7:30 AM – 9:30 AM ET
    CC03 - Managing Complex Partnerships

    Chair: Brandi Middour-Oxler, DNP – Emory University

    Chair: Kasey A. Pearson, RN, BSN, MSN, PNP – Sutter Medical Center

    NRS

  • 7:30 AM – 9:30 AM ET
    CC04--Challenging Nutrition & GI Cases - Dietitian & Gastroenterologist to Moderate Challenging Cases with a Focus on Nutrition & GI Issues

    Chair: Elissa Downs, MD, MPH – University of Minnesota

    Chair: Clarissa F. Morency, BS, RD, LD – Baylor College of Medicine Maconda Brown O'Connor Adult Cystic Fibrosis Center

    NTR

    CLIN

  • 7:30 AM – 9:30 AM ET
    CC05 - Challenging Cases in CF Diagnosis

    Chair: Margaret Rosenfeld, MD, MPH – University of Washington / Seattle Children's Hospital

    Chair: Elizabeth Tullis, MD, FRCPC – University of Toronto

    CLIN

  • 7:30 AM – 9:30 AM ET
    DG18 - Optimizing Women's Health Through PT
  • 7:30 AM – 9:30 AM ET
    DG19 - Accommodations for Our CF Patients Across the Lifespan
  • 7:30 AM – 9:30 AM ET
    DG20 - 'Houston We Have a Problem' - Challenging Cases
  • 7:30 AM – 9:30 AM ET
    DG21 - Micronutrient Assessment Update
  • 7:30 AM – 9:30 AM ET
    DG22 - Hot Topics & Trends in Clinical Research
  • 9:45 AM – 11:45 AM ET
    S22--Where has all the Sputum Gone? Detecting & Diagnosing Infections Without Sputum

    Chair: Lucas Hoffman, MD, PhD – Univ. of Washington & Seattle Children's Hospital

    Chair: Gina Hong, MD, MHS – University of Pennsylvania Perelman School of Medicine

    IMI

  • 9:45 AM – 11:45 AM ET
    S23--Motility & Functional GI Disorders

    Chair: Christopher Velez, MD – Massachusetts General Hospital

    Chair: Dhiren Patel, MBBS, MD (he/him/his) – Saint Louis University School of Medicine

    CLIN

  • 9:45 AM – 11:45 AM ET
    S24--Role of CFTR During Epithelial Development, Differentiation, & Regeneration

    Chair: Margarida Amaral – Univ. de Lisboa, Faculty of Sciences

    Chair: Sriram Vaidyanathan, PhD – Nationwide Children's Hospital

    PTAC/CFTR

    APPTT

    EPP

  • 9:45 AM – 11:45 AM ET
    S25--What Is the Deal with Type 2 Diabetes & CFRD

    Chair: Marisa Desimone, MD – SUNY Upstate Medical University

    Chair: Amir Moheet – University of Minnesota

    CLIN

  • 9:45 AM – 11:45 AM ET
    S26--Guidelines to Implementation

    Chair: Cynthia J. Brady, DNP – Children's Respiratory and Critical Care Specialists

    Chair: Manu Jain, MD – Northwestern University

    NRS

    CLIN

  • 9:45 AM – 11:45 AM ET
    S27--The Things We Don’t Talk About

    Chair: Katherine Kutney – Case Western Reserve University

    Chair: Anthony (Tony) J. Fischer, MD, PhD (he/him/his) – University of Iowa

    EPP

    PTAC/CFTR

  • 9:45 AM – 11:45 AM ET
    S28--Advocating for CF Throughout the Lifespan*

    Chair: Katie Whitley, RN, BSN – Phoenix Children's Hospital

    Chair: Heidi J. Krauss, MSW, LCSW – Northwestern University, Northwestern Memorial Hospital

    NRS

    SW/PSYCH

  • 9:45 AM – 11:45 AM ET
    W27--Impact of Trikafta: Unanticipated Psychosocial Challenges

    Chair: Yelizaveta Sher, MD, FACLP – Stanford University School of Medicine, Stanford, CA, USA

    Chair: Heather Bruschwein, PsyD – UVA Health System

    SW/PSYCH

    CLIN

  • 9:45 AM – 11:45 AM ET
    W28--Clinical Genetics & Beyond

    Chair: Edward F. McKone, MD FRCPI – University College Dublin

    Chair: Karen S. Raraigh, MGC, CGC (she/her/hers) – Johns Hopkins University

    CLIN

  • 9:45 AM – 11:45 AM ET
    W29--Transplantation: Current Outcomes, Readiness & Education of Patients, & Future Directions

    Chair: Don Hayes, Jr., MD – Cincinnati Children's Hospital Medical Center

    Chair: Mingyao Liu, MD – Institute of Medical Sciences, University of Toronto

    APPTT

  • 9:45 AM – 11:45 AM ET
    W30--Online Resources & Remote Monitoring: How COVID Created Learning Opportunities that we can Leverage Moving Forward

    Chair: Kim A. Keeling, Associates Degree – Oregon Health Science University

    Chair: Clare Smith, PT, BSc – University of Calgary

    PT&RT

  • 9:45 AM – 11:45 AM ET
    W31--Airway Physiology Directed Therapies

    Chair: Courtney Reichhardt, PhD – Washington University in St Louis

    Chair: Daniel Devor, PhD – University of Pittsburgh, School of Medicine

    APPTT

  • 12:00 PM – 12:15 PM ET
    15 Minute Guided Meditation
  • 12:00 PM – 12:40 PM ET
    RFPT09 - Rapid Fire Poster Talk 9: Clinical- Clinical Trials

    Chair: Lara Bilodeau, MD, FRCPC – Université Laval

    Chair: Aaron T. Trimble, MD – Oregon Health & Science University

    CLIN

  • 12:00 PM – 12:40 PM ET
    RFPT10 - Rapid Fire Poster Talk 10: CFTR Biology

    Chair: Neeraj Sharma, DVM, PhD – Department of Genetic Medicine, Johns Hopkins University School of Medicine

    Chair: Estelle A. Cormet-Boyaka, PhD – The Ohio State University

    CFTR

  • 12:00 PM – 1:30 PM ET
    R01 - Pulmonary Hypertension
  • 12:00 PM – 1:30 PM ET
    R02 - The Nose as a Model in CF Research
  • 12:00 PM – 1:30 PM ET
    R03 - Autoimmunity in CF
  • 12:00 PM – 1:30 PM ET
    R04 - Dealing with Obesity in PWCF on HEMT
  • 12:00 PM – 1:30 PM ET
    R05 - DIOS & Constipation
  • 12:00 PM – 1:30 PM ET
    R06 - Discussing Wins in RC Management
  • 12:00 PM – 1:30 PM ET
    R07 - Fostering Community Partner Leadership in Improvement & Research
  • 12:00 PM – 1:30 PM ET
    R08 - Gastrointestinal Ph & Ppis
  • 12:00 PM – 1:30 PM ET
    R09 - Gastrostomy Tube Placement for Supplemental Feeding
  • 12:00 PM – 1:30 PM ET
    R10 - How to Implement Home Spirometry into Your Clinical Practice
  • 12:00 PM – 1:30 PM ET
    R11 - How to Run a Productive Pre-Visit Planning Meeting
  • 12:00 PM – 1:30 PM ET
    R12 - How to Write an Abstract
  • 12:00 PM – 1:30 PM ET
    R13 - Integrating the Clinical & Research Teams
  • 12:00 PM – 1:30 PM ET
    R14 - Ionocytes
  • 12:00 PM – 1:30 PM ET
    R15 - Modulators & GI Disease (Especially Pancreatitis) in CF
  • 12:00 PM – 1:30 PM ET
    R16 - Small Bowel Disorders (IBD & Celiac) in CF
  • 12:00 PM – 1:30 PM ET
    R17 - Team Work Makes the Dream Work: Clinical & Research Partnerships for Success
  • 12:00 PM – 1:30 PM ET
    R18 - Work Up of a PWCF Before Referring to GI
  • 12:00 PM – 1:30 PM ET
    R19 - Sustainable Strategies for Telehealth in CF Care
  • 12:00 PM – 1:30 PM ET
    R20 - Building a Diverse Workforce
  • 12:00 PM – 1:30 PM ET
    R21 - Getting Involved in EDI Initiatives at Your CF Center
  • 12:00 PM – 1:30 PM ET
    R22 - Social Determinant of Health Screening in CF
  • 12:00 PM – 1:30 PM ET
    R23 - Value-Based Care: What Is It Anyway?
  • 12:00 PM – 1:30 PM ET
    R24 - CF Medical Home: Elements for Success
  • 12:00 PM – 1:30 PM ET
    R25 - Getting Involved at NACFC: How to get Started
  • 12:00 PM – 1:30 PM ET
    R26 - Keeping Track & Care of the Growing Up & Out CRMS Population
  • 12:00 PM – 1:30 PM ET
    R27 - Pre-Clinic Checklist (Development & Delivery)
  • 12:00 PM – 1:30 PM ET
    R28 - Shake It Up: Partnering to Increase in Person Visits Post Pandemic
  • 12:00 PM – 1:30 PM ET
    R29 - Adult CF Nutrition 101
  • 12:00 PM – 1:30 PM ET
    R30 - CF Related Diabetes
  • 12:00 PM – 1:30 PM ET
    R31 - Emerging Diet Trends
  • 12:00 PM – 1:30 PM ET
    R32 - Enzyme Management
  • 12:00 PM – 1:30 PM ET
    R33 - Essential Fatty Acids
  • 12:00 PM – 1:30 PM ET
    R34 - Food Insecurity
  • 12:00 PM – 1:30 PM ET
    R35 - Medical Marijuana
  • 12:00 PM – 1:30 PM ET
    R36 - Nutrition Quality Improvement
  • 12:00 PM – 1:30 PM ET
    R37 - Nutrition Research & Data Management
  • 12:00 PM – 1:30 PM ET
    R38 - Partnering with Patients on Nutrition
  • 12:00 PM – 1:30 PM ET
    R39 - Pediatric CF Nutrition 101
  • 12:00 PM – 1:30 PM ET
    R40 - Pregnancy
  • 12:00 PM – 1:30 PM ET
    R41 - Probiotics & Prebiotics/Gut Microbiome
  • 12:00 PM – 1:30 PM ET
    R42 - Tube Feeds
  • 12:00 PM – 1:30 PM ET
    R43 - 'Are You Tech Savvy?'-Expanding Pharmacy Technician Roles
  • 12:00 PM – 1:30 PM ET
    R44 - "I am Not Feeling It"-Medication Management for Changes in Mental Health
  • 12:00 PM – 1:30 PM ET
    R45 - "In the Weeds"- Medical Cannabis/CBD/THC
  • 12:00 PM – 1:30 PM ET
    R46 - "To Insulin & Beyond"-CFRD Pharmacotherapy
  • 12:00 PM – 1:30 PM ET
    R47 - “Don’t Trust Your Gut”- Medication Management of SIBO
  • 12:00 PM – 1:30 PM ET
    R48 - 'Red or Blue'- Patient Assistance in Matrix Model Insurance Plans
  • 12:00 PM – 1:30 PM ET
    R49 - 'The Dark Side of HEMT' - Trikafta Adverse Effects Beyond the Package Insert
  • 12:00 PM – 1:30 PM ET
    R50 - Are You a Max or Sub-Max? Exercise Testing in the CF Clinic
  • 12:00 PM – 1:30 PM ET
    R51 - Beware of the Bump: Acts & Safe Exercise During Pregnancy
  • 12:00 PM – 1:30 PM ET
    R52 - Bridging the Inpatient/Outpatient Gap in RT Care
  • 12:00 PM – 1:30 PM ET
    R53 - PT Screening & Treatment for Vestibular Dysfunction
  • 12:00 PM – 1:30 PM ET
    R54 - Don't Give 'Em a Break: Prevention & Safe Exercise for People with Low Bone Mineral Density
  • 12:00 PM – 1:30 PM ET
    R55 - Early Identification: PT's & Motor Developmental Screening
  • 12:00 PM – 1:30 PM ET
    R56 - Every Breath You Take: Treating Asthma in PwCF
  • 12:00 PM – 1:30 PM ET
    R57- For the 100th Time, Urinary Incontinence Is NOT NORMAL! PT Can Help with Pelvic Health
  • 12:00 PM – 1:30 PM ET
    R58 - Getting Grippy With It: Lean Mass & Exercise Prescription Using Hand Grip Dynamometry
  • 12:00 PM – 1:30 PM ET
    R59 - Growing Pains: Transitioning to Adult Care
  • 12:00 PM – 1:30 PM ET
    R61 - The Impact of Food Insecurity on Act's
  • 12:00 PM – 1:30 PM ET
    R62 - The Tech Savvy RT
  • 12:00 PM – 1:30 PM ET
    R63 - What about ACTs in the Era of HEMTs: An RT Dilemma
  • 12:00 PM – 1:30 PM ET
    R64 - Where There Is Smoke: Vaping & CF
  • 12:00 PM – 1:30 PM ET
    R65 - CF Drug Discovery & Delivery
  • 12:00 PM – 1:30 PM ET
    R66 - CFTR Processing & Trafficking
  • 12:00 PM – 1:30 PM ET
    R67 - CFTR Structure, Function, & Modulator Effect
  • 12:00 PM – 1:30 PM ET
    R68 - Emerging Modulators for CF Therapy
  • 12:00 PM – 1:30 PM ET
    R69 - Human Model Systems (in Vitro/ex Vivo) for Studies of CF Mechanism & Therapy
  • 12:00 PM – 1:30 PM ET
    R70 - iPSC Technology; New Frontiers
  • 12:00 PM – 1:30 PM ET
    R72 - Revisiting CFTR Interactions; Old Partners & New Players
  • 12:00 PM – 1:30 PM ET
    R73 - Adolescent Reproductive Health
  • 12:00 PM – 1:30 PM ET
    R74 - Child Life Networking
  • 12:00 PM – 1:30 PM ET
    R75 - Co-Designing Behavioral Health Interventions with Teens
  • 12:00 PM – 1:30 PM ET
    R77 - Domestic Violence in Adults with CF
  • 12:00 PM – 1:30 PM ET
    R78 - Navigating Religious Barriers
  • 12:00 PM – 1:30 PM ET
    R79 - Palliative Care & the Role of SW
  • 12:00 PM – 1:30 PM ET
    R80 - Psychology Networking for New Clinicians to CF
  • 12:00 PM – 1:30 PM ET
    R81 - Screening for Executive/Cognitive Functioning Issues
  • 12:00 PM – 1:30 PM ET
    R82 - Social Work Networking for SW New to CF Care
  • 12:00 PM – 1:30 PM ET
    R83 - Supportive Group Therapy for Teens
  • 12:00 PM – 1:30 PM ET
    Social Work Trainee Networking Event
  • 12:00 PM – 1:30 PM ET
    U.S. Center & Program Directors' Meeting
  • 12:00 PM – 1:30 PM ET
    L&L07 - Coping Plans for Procedural Anxiety
  • 12:00 PM – 1:30 PM ET
    L&L08 - Dealing with Team Turnover: Best Practices & Next Steps
  • 12:00 PM – 1:30 PM ET
    L&L09 - Recruiting a Diverse Population for Clinical Research
  • 12:00 PM – 1:30 PM ET
    L&L10 - Feeding Challenges: Medical & Behavioral Approaches
  • 12:00 PM – 1:30 PM ET
    L&L11 - Challenging Cases of Staphylococcus Aureus: All the Questions You Were Too Afraid to Ask
  • 12:00 PM – 1:30 PM ET
    L&L12 - Diabetes Technology for the CF Team
  • 12:30 PM – 12:45 PM ET
    15 Minute Guided Meditation
  • 12:45 PM – 1:25 PM ET
    RFPT11 - Rapid Fire Poster Talk 11: Clinical- Epidemiology

    Chair: Elizabeth Cromwell, PhD – Cystic Fibrosis Foundation

    Chair: Sameer Desai

    CLIN

  • 12:45 PM – 1:25 PM ET
    RFPT12 - Rapid Fire Poster Talk 12: Infection, Microbiology, & Immunity

    Chair: Andrea Hahn, MD, MS – Children's National Hospital

    Chair: Catherine R. Armbruster, PhD, MPH – University of Pittsburgh

    IMI

  • 1:30 PM – 1:45 PM ET
    15 Minute Guided Meditation
  • 1:30 PM – 2:00 PM ET
    Coffee Break in the Poster Hall
  • 2:00 PM – 3:15 PM ET
    P3 - Evolving with the Times: Staying Agile with a Diverse and Aging CF Patient Population
  • 3:30 PM – 5:30 PM ET
    S29--Advances in Imaging

    Chair: Jennifer Goralski, MD – UNC School of Medicine

    Chair: Michael R. Narkewicz, MD – University of Colorado SOM and Children's Hospital Colorado

    CLIN

  • 3:30 PM – 5:30 PM ET
    S30--PT/RT Research Year in Review

    Chair: Kenneth Wu, MA(SocSci), BScPT, MBA, PhD – St. Michael's Hospital, Unity Health Toronto

    Chair: Ginger McPhail, MS, RRT – Cincinnati Children's Hospital Medical Center

    PT&RT

  • 3:30 PM – 5:30 PM ET
    S31--Stronger Together: Updates from International Clinical Trials

    Chair: George Retsch-Bogart – Division of Pediatric Pulmonology University of North Carolina School of Medicine

    Chair: Jonathan Rayment, MDCM MSc – University of British Columbia

    CLIN

  • 3:30 PM – 5:30 PM ET
    S32--Culturally Aware of CF Care

    Chair: Chloe Ford, LCSW – Ann & Robert H. Lurie Children's Hospital of Chicago

    Chair: Chandra Gordon, LMSW – University of Kansas Health System

    SW/PSYCH

    HEAC

  • 3:30 PM – 5:30 PM ET
    S33--Tone Your Bones: Promoting Bone Health Across the Lifespan

    Chair: Julie A. Christiansen, AS, PT – Children's Minnesota

    Chair: Valerie Tarn, MS, RDN, LD – UAB

    NTR

    PT&RT

  • 3:30 PM – 5:30 PM ET
    S34--Best of Journal of Cystic Fibrosis, American Journal of Respiratory Critical Care Medicine, Thorax*

    Chair: Patrick A. Flume, MD – Medical University of South Carolina

    Chair: Bonnie W. Ramsey, MD – University of Washington School of Medicine

    Chair: Alan R. Smyth – University of Nottingham

    CLIN

  • 3:30 PM – 5:30 PM ET
    W32--Airway Ions, Fluids & Mucus Transport

    Chair: Nam Soo Joo, PhD – Stanford University

    Chair: T. Spencer Poore, MD, MSCS – University of Alabama at Birmingham

    APPTT

  • 3:30 PM – 5:30 PM ET
    W33--Best Abstracts in Endocrinology

    Chair: Alberto Battezzati, MD, PhD – University of Milan

    Chair: Sana Hasan, DO – Cleveland Clinic

    CLIN

  • 3:30 PM – 5:30 PM ET
    W34--Host Response to Infection

    Chair: Clemente J. Britto, MD – Yale University School of Medicine

    Chair: Matthew Long, PhD – The Ohio State University

    IMI

  • 3:30 PM – 5:30 PM ET
    W35--Nutrition Research

    Chair: Kanan Patel, MS RD CSP (she/her/hers) – Children's HealthCare of Atlanta

    Chair: Erin Seffrood, MS, RD, CSP – American Family Children's Hospital

    NTR

  • 3:30 PM – 5:30 PM ET
    W36--Genetic & Cell-Based Approaches to CF Therapy

    Chair: Hillary Valley, PhD (she/her/hers) – Cystic Fibrosis Foundation

    Chair: Alejandro Pezzulo – University of Iowa

    PTAC/CFTR

    EPP

  • 3:30 PM – 5:30 PM ET
    W37--Biomarkers

    Chair: Emily DeBoer, MD – University of Colorado / Children's Hospital Colorado

    Chair: Assem G. Ziady, Ph.D. – Cincinnati Children’s Hospital Medical Center

    APPTT

    CLIN

  • 7:00 PM – 11:00 PM ET
    Closing Event