Expectant Parent Resources

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What is Down syndrome?

• Info from the National Down Syndrome Society

 

Online support

(for those continuing a pregnancy)

• DSDN Pregnancy Group

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Support

(for those unsure about the pregnancy)

• BabyCenter: Down Syndrome Pregnancy

• National First Call Center

• National Down Syndrome Adoption Network

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Screening/testing information​​​​

• Common Tests During Pregnancy (Johns Hopkins)

• Prenatal care and tests (Office on Women's Health- OASH)

• Find a Genetic Counselor

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Print/online resources​

• American Academy of Pediatrics Health Supervision For Children and Adolescents with Down Syndrome (2022)

• Book List for Parents of Children with Down Syndrome ​(Listopia)

• Count the Kicks (evidence-based stillbirth prevention campaign)

• Diagnosis To Delivery

• Julia's Way: Breastfeeding Support

• Welcoming a Newborn with Down syndrome 

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New parent gifts to request

• Brittany's Baskets of Hope

• Jack's Basket​

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Join DSDN's online support for parents:

• Pregnancy Group (for moms)

• Rockin' Dads

• Black Families 

• Rockin' Moms en Español

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More DSDN layers of support:

• Pregnancy Support

• Birth Clubs

• Topical Groups

• Local Connections

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