Northwell Health
New Hyde Park, New York, United States
I am a trained Pediatric Hematologist/ Oncologist with a committed interest and passion for diagnosing and treating bleeding and clotting disorders in children and adults with inherited bleeding disorders. I am the Medical Director of the federally designated Northwell Health Hemostasis and Thrombosis Center where children and adults with inherited bleeding disorders receive comprehensive care. I have been privileged to have the opportunity to establish the first North American ultra Rare Bleeding Disorder (NARBD) registry as a fellow in training which provided us an estimate of the distribution of these disorders. More recently as part of the American Thrombosis and Hemostasis Network (ATHN) ultra Rare Bleeding Disorders (RBDs) subcommittee we published data on ultra RBDs collected as an ATHN- CDC project which shed light on the need for accurate data collection. I am on the Steering committee for ATHN -10 offering genetic testing for ultra RBDs using NexGen sequencing. As a member and co-chair of WG 3 for ultra RBDs for the National Hemophilia Foundation- State of the Science Research Summit national priorities for clinical care, research and infrastructure for ultra RBDs were identified which culminated in a white paper to be published soon. I am also a member of the steering committee for the International Fibrinogen Network project to design a platform for improved understanding of inherited fibrinogen disorders for clinical and research collaborations between physicians and patients. I strive to find opportunities to educate residents, fellows, colleagues on rare disorders for accurate diagnosis, management and access to care.
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Tuesday, October 18, 2022
10:55 AM – 12:00 PM
Tuesday, October 18, 2022
11:00 AM – 11:20 AM
Tuesday, October 18, 2022
11:40 AM – 12:00 PM