Assistant Professor University of Nebraska Medical Center Omaha, Nebraska, United States
This symposium will highlight three largest spinal cord injury (SCI) databases in the North America and demonstrate the opportunities and challenges of pooling data from different sources for building cumulative knowledge bases. Analyzing data from these databases, we will present profile of people living with SCI for years to help project needs and allocate resources for health care and social supports. We will review efforts toward data harmonization and standards for interoperable health information exchange. Taking advantage of the vast but different data already collected over years requires sophisticated statistical methodology. We will discuss a meta-analytic approach to address nuances across data sets for knowledge synthesis. Ultimately, our ability to speak the same language with regard to data elements will facilitate international collaborations and cumulative knowledge building that will further advance our ability to apply such knowledge bases to a broader representative population in clinical care.
Describe the three largest spinal cord injury (SCI) databases/registries in the North America
Discuss the opportunities and challenges in building cumulative knowledge bases through integrative data analysis across different data sets
Identify opportunities for data harmonization and standards for interoperable health information exchange