Since the inception of Patient-Oriented Research (POR), arguably one of the most transformative and ethical approach to knowledge generation in light of public research funding, new approaches including Community-Engaged Research (CEnR) has evolved to acknowledge the social role of tertiary institutions. Cutting-edge approaches have moved away from "health as illness" to support prevention in community settings (Langevin et al., 2021). This symposium introduces recent advancements in CEnR methods, and examine its distinctives in relation to POR. To make these abstract discussions more concrete, three preventive or rehabilitative studies on cognitive health will be presented, with emphases on their aims, methods, and outputs. Extended Q&A will focus on comparing POR and/or CEnR methods in these studies to distil general principles on how and when to use which approaches. The symposia will conclude with a sharing of challenges and best practices to support emerging scholars who are interested to use these methods.
Appreciate the importance of Community-Engaged Research (CEnR) and the need for collaborating and partnering with people with dementia or dementia risk
Recognize the potential of innovative methods of Participatory Action Research (PAR) to support social change, e.g., around dementia-related stigma and discrimination
Identify steps for engaging people living with specific diseases and their allies to enhance community or patient voice, e.g., during community walking
List the strengths and limitations of Patient-Oriented Research (POR) and CEnR methods in relation to place-based health disparities
Design a POR and/or CEnR project based on research goals