Principal Investigator, Global Pediatric Epilepsy Surgery Registry
The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
Monika Jones, JD, is the visionary founder and executive director of The Brain Recovery Project, a patient advocacy organization that funds research and provides information, advocacy, and support services to parents and caregivers of children who require surgical treatment for refractory epilepsy. She is the principal investigator of the organization's Global Pediatric Epilepsy Registry, a patient-powered by parent proxy retrospective and prospective study to understand the developmental trajectory after pediatric epilepsy surgery. Ms. Jones is an active member of the Rare Epilepsy Network, the Epilepsy Leadership Council, the Infantile Spasms Action Network, and is on the board of directors of the Council of Parent Attorneys and Advocates, the only national organization that advocates for the educational civil rights of children with disabilities. She is also a member of education committee for Perkins School for the Blind.
Tuesday, September 28, 2021
12:35 PM – 1:50 PM ET