Genetics, genomics and proteomics
Session Overview: Ethical issues in biobanking and genomic research remain highly complex. Balancing the desires and best interests of the family and the child with the need for discovery brings up many challenging issues for pediatric researchers. Faculty will address the rules and challenges surrounding depositing genomic data in public databases, including requirements for return of results. They will explore how to manage difficult encounters, including what to do if a family asks for the genomic sequence data, and how to tackle challenging issues that may arise, including non-paternity and parental “guilt” for transmitting a causal variant. They also will cover the necessary considerations that arise in doing studies on minors. The session includes a panel of parents who will discuss how to balance engagement in research and parent/patient desires with these practical limits.
Speaker: Sampath Prahalad, MD, MSc – Emory + Children's Pediatric Institute
Speaker: Lainie Ross, MD, PhD – University of Chicago
Q&A Moderator: Karen Onel, MD – HSS
Q & A Presenter: Sampath Prahalad, MD, MSc – Emory + Children's Pediatric Institute
Q & A Presenter: Lainie Ross, MD, PhD – University of Chicago