Cure SMA's Fall 2024 Walk-n-Roll events are open! By participating in our Walk-n-Roll, you can make a real difference in the lives of those affected by SMA. Read below to learn more about our fall Walk-n-Rolls https://lnkd.in/gG6sUNAf
Cure SMA
Non-profit Organizations
Elk Grove Village, Illinois 8,394 followers
Funding groundbreaking research for #SMA. Determined to find a cure & support our changing community
About us
Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). Since 1984, Cure SMA has grown to be the largest U.S.-based network of individuals, families, clinicians, and research scientists working together to advance SMA research, support individuals and families impacted by SMA, and educate public and professional communities about SMA. Cure SMA funds and directs comprehensive research that drives breakthroughs in treatment, advances access to high-quality care, provides practical support programs, and advocates for the needs of the SMA community. Learn more at www.curesma.org.
- Website
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http://www.curesma.org
External link for Cure SMA
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Elk Grove Village, Illinois
- Type
- Nonprofit
- Founded
- 1984
- Specialties
- Spinal Muscular Atrophy, SMA, Rare Disease, Rare Diseases, Healthcare, Health Care, Research, Basic Research, Clinical Research, Clinical Care, Clinical Resources, Care, Care Center Network, Community Support, Support Programs, Pharmaceutical , Events, Educational Events, Fundraising , and Fundraising Events
Locations
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Primary
Get directions
925 Busse Rd
Elk Grove Village, Illinois 60007, US
Employees at Cure SMA
Updates
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Let's give it up for our Gold Sponsors of the 2024 Annual SMA Conference! Thank you Accredo by Evernorth Alcyone Therapeutics Inc. NMD Pharma A/S and Ultragenyx for your amazing partnership.
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Congratulations to all the Cure SMA staff who celebrated work anniversaries this past April Thank you for your continued commitment to our mission #SMACommunity Kenneth Hobby 5/1 (18yrs) Jessica Tingey 5/2 (2yrs) Shannon O'Brien 5/5 (14yrs) Erin Welsh 5/15 (1yr) Kyle Houlihan 5/17 (3yrs) Alissa deRamus 5/23 (8yrs) Lisa Belter 5/23 (8yrs) Lauren Tanenbaum 5/24 (3yrs) Amber Ewert Snyder 5/29 (12yrs) Zach Galati 5/30 (1yr) Thank you for all your hard work!
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Novartis Gene Therapies recently released an update to the SMA community related to clinical trials and long term follow up studies of Zolgensma. Check it out now in our news section: https://lnkd.in/gPsyP57n
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Thank you to Scholar Rock for partnering with Cure SMA as a Title Exhibitor of the 2024 Annual SMA Conference!
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Thank you to Biohaven Dell Children's Ascension, UT Health Austin and Permobil for partnering with Cure SMA as Purple Exhibitors of the 2024 Annual SMA Conference!
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Thank you to Accredo by Evernorth Alcyone Technologies Pvt. Ltd. Therapeutics, Partners in Medicine, BraunAbility ASL, NEOTech Megan Dejarnett, Geanted Engineering, Wheel the World SpotSaver Hayek Medical Devices and the Christopher & Dana Reeve Foundation for partnering with Cure SMA as Orange Exhibitors of the 2024 Annual SMA Conference!
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Earlier this month, Genentech released an update related to Evrysdi® (risdiplam) and shared a recap of their spring activities in service of the SMA community. Read more in our news section: https://lnkd.in/g5FrCYCJ