Assistant Professor University of Arizona, College of Medicine Tucson, Arizona
This abstract has been invited to present during the Better Patient Outcomes through Diversity Platform poster session
Rationale: Patients with epilepsy can practice self-management to better manage seizures, medication adherence, and lifestyle factors. The CDC-funded Managing Epilepsy Well network has established a suite of evidence-based self-management programs (MEW-EBPs) that improve self-management (PACES) and co-morbidities of depression (UPLIFT) and cognitive function (HOBSCOTCH) in people with epilepsy (PWE). Adoption and implementation of MEW-EBPs is challenging. Management Information Decision Support Epilepsy Tool (MINDSET) is a self-management decision support program with demonstrated acceptability, feasibility, and effectiveness that can be adapted as a mobile health (phone- and tablet-based) solution to assessing and onboarding PWE into MEW-EBPs. By providing health care providers (HCPs) a ‘hub’ to provide their patients with tailored and integrated evidence-based self-management programs the recruitment, retention, and successful completion in these programs may be enhanced.
The purpose of this study was to develop MINDSETPlus to assist HCPs determine patient eligibility and need for MEW-EBPs (UPLIFT, PACES, and HOBSCOTCH) and facilitate linkage to these programs. Methods: A phased development comprised:1) content analysis to upgrade functional specifications of the original MINDSET program and back-end data base informed from RCT field data; 2) literature review to determine inclusion / exclusion criteria for onboarding PWE into MEW-EBPs and triaging for social support services; 3) design document development; 4) expert panel design review; 5) upgrade to current operating standards and responsive cross-platform compatibility (Windows, IOS, Android), and 6) feasibility planning. Results: MINDSETPlus is a decision-support tool that uses web-responsive architecture accessible by PWE and HCPs through phone, tablet, or desktop devices. In addition to original self-management assessment and goal-based Action Planning, MINDSETPlus has enhanced features that query PWE using validated items adapted from QoL31, PH9, and social support triage assessments, application of empirically-based decision criteria to provide the PWE and HCP with tailored recommendations on appropriateness of three MEW-EBPs (UPLIFT, PACES, and HOBSCOTCH) and prioritized order of program delivery. Conclusions: MINDSETPlus enhancements are consistent with empirical evidence and expert opinion on provision of state-of-the-art self-management programs for PWE. Next steps of usability and feasibility testing are indicated. Funding: Please list any funding that was received in support of this abstract.: DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention