Red Talk

Neurodegenerative Disease (e.g. MS, Parkinson's disease)

Cross-Cutting

ICC 2: Post-Acute and Community Rehabilitation: Present and Future Practice & Needs

How do people living with Parkinson disease envision their participation in health care reform?

Thursday, October 22, 2020

1:35 PM – 1:43 PM EST

Presenter(s)

Mark A. Hirsch, PhD, FACRM

Senior Scientist; Director Parkinson Disease and Movement Disorders Lab
Carolinas Rehabilitation/Carolinas Medical Center
Charlotte, North Carolina

Presentation Slides
Erwin E. van Wegen, PhD

Associate Professor
Amsterdam University Medical Center
Amsterdam, Noord-Holland

Non-presenting author(s)

VN

Vu Q. Nguyen, MD

Vice Chair Medical Education
Department of PM&R, Carolinas Medical Cener
Charlotte, North Carolina

Increasing physical activity, as part of an active lifestyle, is an important health goal for individuals with Parkinson disease (PD). Exercise can positively impact health related quality of life. Given this, how can we promote physically active lifestyles among PD patients (most of whom are sedentary)? Here we suggest that health care professionals could significantly expand their impact by collaborating with PD patients, their spouses (or caregivers) and scientists to increase exercise in regionalized networks as equal “partners” or “colleagues”. We outline reasons why collaborative approaches are important in PD, including the need to increase social capital, which deals with issues of trust and the value of social networks in linking members of a community.

Learning Objectives:

To discuss key elements of a collaborative integrative regional PD participatory health care concept
Discuss key challenges of implementing the PD concept in clinical practice
Discuss opportunities for use of collaborative PD care in ongoing projects