Symposium

Limb Restoration Rehabilitation

Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)

Cross-Cutting

Designing a Patient Educational Resource for Limb Loss: First Step - A Guide for Adapting to Limb Loss (897667)

Presenter(s)

• 

  Denise Hoffmann, BSN, RN

  Patient Advocate
  Freedom Innovations
  O’Fallon, Missouri

  Handouts
• 

  Dan Ignaszewski

  Chief Policy & Programs Officer
  Amputee Coalition
  Washington, District of Columbia
• 

  Prateek Grover, MD, PhD, MHA

  Assistant Professor; Medical Director
  Washington University in St Louis; The Rehabilitation Institute of St Louis
  Chesterfield, Missouri

  Presentation Slides

Background -Written educational resources can be very helpful for patient and caregiver education. In order to keep the content current, updating the resource is vital. 
Objective - Redesigning the First Step Manual to reflect current knowledge and guidance for patients with limb loss / difference and caregivers
Methods - A workshop with stakeholders representing multiple disciplines was convened to discuss and rewrite the First Step Manual. At the conclusion of the workshop, a task list was generated with weekly tasks to complete publication by Mar 2020, as the deliverable of a funded study.
Results - First Step was exhaustively redesigned and published. The central theme identified was the patient journey. Limb loss and difference were represented for both upper and lower limb. 
Discussion - First Step compares favorably to other patient resource manuals. An ongoing survey of workshop participants and patients aims to identify utility /redesign.

Learning Objectives:

• Describe educational resources available to the patients with limb loos/ difference and caregivers
• List the main subjects addressed and resources detailed in the First Step resource manual
• Describe the impact of the First Step resource manual on patients / caregivers and professionals
• Identify how First Step can be used in own practice