The National Limb Loss and Preservation Registry is a 5-year project to develop, establish, and populate a national registry, funded by the National Institutes of Health and Department of Defense. The goal is to build a database to support research, practice and policy in the field of limb loss rehabilitation. Quality improvement data is being collected on amputations and hospitalizations, prosthetic fitting and manufacture, patient-reported outcomes, and eventually, may include objective functioning patient data. The deidentified data is intended to be used for clinical care by physicians, wound care and rehabilitation specialists, therapists and prosthetists. It is anticipated that this data will also guide engineers and industrial scientists for prosthetic device design, and help health economists, policy makers, advocacy groups and payer organizations to make informed decisions regarding rehabilitation and prosthesis use.
Define the purpose of the limb loss registry
Describe the categories of the data being collected
List practice, research, and policy questions that the registry could answer for the participant's discipline
Discuss potential strategies for maintaining the registry