Symposium

Limb Restoration Rehabilitation

Clinical Practice (assessment, diagnosis, treatment, knowledge translation/EBP, implementation science, program development)

Cross-Cutting

Health Services Research

Measurement

The National Limb Loss and Preservation Registry (826774)

Presenter(s)

• 

  Kenton R. Kaufman, PhD, PE

  W. Hall Wendel Jr. Musculoskeletal Research Professor
  Mayo Clinic
  Rochester, Minnesota

  Presentation Slides
• 

  Danielle H. Melton, MD, FAAPMR

  Associate Professor McGovern Medical School
  Director of Limb Loss Program at TIRR-MH
  Houston, Texas

  Presentation Slides
• 

  Prateek Grover, MD, PhD, MHA

  Assistant Professor; Medical Director
  Washington University in St Louis; The Rehabilitation Institute of St Louis
  Chesterfield, Missouri

  Presentation Slides

The National Limb Loss and Preservation Registry is a 5-year project to develop, establish, and populate a national registry, funded by the National Institutes of Health and Department of Defense. The goal is to build a database to support research, practice and policy in the field of limb loss rehabilitation.
Quality improvement data is being collected on amputations and hospitalizations, prosthetic fitting and manufacture, patient-reported outcomes, and eventually, may include objective functioning patient data. The deidentified data is intended to be used for clinical care by physicians, wound care and rehabilitation specialists, therapists and prosthetists.  It is anticipated that this data will also guide engineers and industrial scientists for prosthetic device design, and help health economists, policy makers, advocacy groups and payer organizations to make informed decisions regarding rehabilitation and prosthesis use.

 

Learning Objectives:

• Define the purpose of the limb loss registry
• Describe the categories of the data being collected
• List practice, research, and policy questions that the registry could answer for the participant's discipline
• Discuss potential strategies for maintaining the registry