TIRR Memorial Hermann
ACRM Cognitive
Rehabilitation Training Course
Register
Buy Now
Symposium
Spinal Cord Injury
Health Services Research
David R. Gater, Jr., MD, PhD, MS
Professor, Chair and SCI Fellowship Program Director
University of Miami Miller School of Medicine
Miami, Florida
Ken Wood, PhD
Program Specialist
NIDILRR
Trevor A. Dyson-Hudson, MD
Director, Center for Spinal Cord Research
Kessler Foundation
West Orange, New Jersey
Yuying Chen, MD, PhD
Professor
University of Alabama at Birmingham
Birmingham, Alabama
Anne Deutsch, RN, PhD, CRRN
Clinical Research Scientist
Shirley Ryan AbilityLab
Naperville, Illinois
Jeanne Zanca, PhD, MPT, FACRM
Senior Research Scientist
Kessler Foundation
West Orange, New Jersey
Heather B. Taylor, PhD
Director for Spinal Cord Injury and Disability Research
TIRR Memorial Hermann
Houston, Texas
.jpg "Amanda L. Botticello, PhD, MPH photo")
Amanda L. Botticello, PhD, MPH
Senior Research Scientist
Kessler Foundation
West Orange, New Jersey
Elizabeth R. Felix, PhD
Research Associate Professor
University of Miami Miller School of Medicine
Miami, Florida
The Spinal Cord Injury (SCI) Model Systems program began in 1970 -- 50 years ago—as a comprehensive “system of care” concept to address traumatic SCI. A key component of the program is the SCI Model System database that has been in existence since 1973 and includes initial hospitalization data (e.g. demographic, diagnosis, impairment, motor function, and comorbidity data) for 34,130 individuals with a recent onset-SCI (data through September 2019). Follow-up interviews with database participants are collected at 1 year post-injury, 5 years post-injury, and every 5 years thereafter. The SCI Model Systems database is the world's largest and longest active SCI research database and the world’s most extensive source of available information about the characteristics and life course of individuals with SCI. This symposium will provide an overview of the database, including its history, availability, as well as best practices for analysis of the data, and future directions.