Showing You Care About Stroke Through Shared Measures: How to Improve Clinical and Research Outcomes by Implementing Core Outcomes Measure Sets and Common Data Elements (841232)

Friday, October 23, 2020

2:00 PM – 3:15 PM EST

Presenter(s)

Julie L. Schwertfeger, PhD

Assistant Professor
Rosalind Franklin University of Medicine & Science
North Chicago, Illinois

Presentation Slides Presentation + Audio
Lyn Jakeman, PhD

Associate Director, Division of Neuroscience
National Institute of Neurological Disorders and Stroke, National Institutes of Health
Bethesda, Maryland
Susan H. Lin, ScD, OTR/L, FAOTA

Program Director
Marymount University
Round Hill, Virginia
Jennifer Weaver, MA, OTR/L, CBIS

Research Associate
The George Washington University
Washington, District of Columbia
Allen W. Heinemann, PhD, ABPP, FACRM

Director
Center for Rehabilitation Outcomes Research, Shirley Ryan AbilityLab
Chicago, Illinois
Stephanie A. Kolakowsky-Hayner, PhD, CBIST, FACRM

President Elect
American Congress of Rehabilitation Medicine
San Jose, California
William v. Padula, OD SFNAP FAAO FNORA

Director
Padula Institute of Vision Rehabilitation
Guilford, Connecticut
Sarah J. Wallace, PhD BSpPath(Hons) Grad Cert Gerontology

NHMRC Emerging Leadership Fellow
The University of Queensland
St Lucia, Queensland
SW

Sarah E. Wallace

Non-presenting Author(s)

Jane E. Sullivan, PT, DHS, MS

Professor
Northwestern University
Arlington Heights, Illinois
Leora R. Cherney, PhD, CCC-SLP, BC-ANCDS, FACRM

Coleman Foundation Chair and Scientific Chair, Think and Speak Lab
Shirley Ryan AbilityLab
Chicago, Illinois
Namrata Grampurohit, PhD, OTR/L

Assistant Professor
Thomas Jefferson University
Philadelphia, Pennsylvania
JB

Julie Bernhardt, PhD

Professor
Florey Institute of Neuroscience and Mental Health
Heidelberg VIC, Victoria

Stroke is the second leading cause of death and a major cause of disability worldwide. There are over 6.5 million people in the world living with the effects of stroke, and this number is expected to triple between 2010 and 2050 resulting in pressing issues for healthcare delivery, resources, and logistics that include annual care costs of $34 in the US alone. Core outcome sets (COS) and Common data elements (CDE) are designed to help clinicians, health systems, and researchers improve knowledge sharing, collaboration, and client outcomes. This symposium provides an overview of stroke COS and CDE. A clinical case highlights how the COS and CDE can improve outcomes, efficiencies, and data sharing. Initiatives and resources on developing and translating COS and CDE into practice and research will be explained. Clinical team and health outcome benefits will be illustrated. Audience discussion on barriers and facilitators will be included.

Learning Objectives:

Define: Core Outcome Sets (COSs)and Common Data Elements (CDEs) for stroke outcome measures. 1. Understand and discuss the important points in research about neuro-visual processing affected by a stroke.
Describe stroke COS and CDE initiatives in both research and clinical practice.
Describe the value of interdisciplinary COSs and CDEs adoption in individual practice, clinical research, and health service outcomes.
Identify resources to facilitate COS and CDE adoption and integration in clinical practice and research.
Describe how COS and CDE can improve team collaboration. 1. Understand how prescribed yoked prisms by neuro-optometrists in conjunction with occupational therapy affecting postural organization, movement and visually guided action affecting team efforts in rehabilitation.